I gained 10 pounds (108 from 98), hair is not longer-but is thicker, feel less fatigue and more joy, no joint pain at all…overall just feeling better.
Hair still is breaking-may be early menopause more than Lupus, immune system is struggling to not get sick, latest bloodwork shows the kidneys are still full of protein despite a month of medication, I now have triple the cholesterol that I should have due to the protein.
We are upping the meds and giving it time, so keep the prayers coming.
Today was the virtual consult with the nephrologist. The biopsy revealed the Class 5 Membranous Lupus we were expecting. This was good news since the kidneys were not worse than we thought. The medications will be intense. 2000mg Cellcept daily and 25 mg of steroids daily.
Nervous if similar side effects will occur like last time causing my hair to fall out, lip blisters and overall decline in my weight and health. This drug is most famous for the stomach issues which is a struggle when you are trying to gain weight. Overall, my biggest fear is just struggling to stay thriving. Fatigue is real on these medications! But, this is a fight for a major organ so I will suck it up and follow doctor’s orders.
I serve a mighty God! I serve a God that saves and goes with me. Today made me feel frustrated that we have to get serious with medication right before I start back to school where my stress kicks in the highest…so afraid of going backwards and just feeling beat down when I need to be stepping it up. But I will trust in God’s promise that he goes before me, stay grateful for the good things he has done and remain hopeful for a cure and better tomorrow with Lupus.
One of my last posts, I mentioned my husband considering leaving the police force. The pic above was his last day on the job. He officially resigned in October and began his new job in medical sales in November.
Pros: works M-F, off on weekends and holidays, he has a normal routine, his body is rested, we can make plans as a family, good pay and benefits.
Cons: he sells hospice so he deals with death daily, the medical field can be daunting, his company is having some growing pains, we lost our fun summer days together, he cannot see him doing this the next ten years.
So although on most levels, things are better…he still has not found what he is looking for in life. Amazing how he can do 10 years in one field, but not even get to one in another. It all comes down to purpose and I pray he finds his.