Leave it to Texas to not know how it feels. It’s like my therapy I attend monthly…just talking until I figure it out. But here I am, under a heated blanket, beside a fire and trying to be productive while the city and school shuts down for an ice day.
I will not complain. I love the time at home…introvert and homebody over here. Love being lazy and love time with my son. Hoping I use this day to catch up with God and with life!
I am sick. Lupus does that to you. Most days I do not mind. Most days my disease is manageable. On the hard days, it sucks, but all in all I am blessed. My struggle is silent. I go to work daily. I rarely complain. The people who know the truth are my son and husband. They feel the weight of my lack of energy and overall fatigue. Sad, but true. My job gets the best I can offer while my family suffers.
I started with Plaquenil and it worked until it didn’t. Methotrexate was a no go after a few months. Cellcept lasted a month, but I am stopping it due to excessive hair loss. I am sick, but I refuse to look sick.
This was a good pic of me in November. Hard to believe that was 3 months ago.
I have such thick hair that the hair loss is still somewhat disguisable, but I see it and feel it.
This is Lupus. It is sneaky and complicated and can bring even a confident person to their knees. I am stopping Cellcept until we can start something else. I am willing to endure the temporary pain. Pray with me as we figure this out. I think Benalysta may be next.