Sometimes the hardest thing about Lupus is not the disease, but the medication for the disease. I was coming down with a cold which means disaster for my body-think aches, fever, muscle cramps, fatigue, sore throat…all for a cold. So I had to increase my steroids by a lot…I mean a lot a lot and the return is what we call steroid face. A necessary evil. You feel better, but look worse as your face appears to swell overnight.
I am thankful to God for the medications needed to live and wish I was not so vain…but it does stink what it takes to stay healthy-it .is.hard.
On a positive note, I gained weight and my hair is growing. I feel better and less depressed so life is good today!
Getting the news was expected, but still hard as I am pretty sensitive to medication I think due to my small frame. I call myself a one-percenter. If it has a small chance of happening…even one percent it happens to me. Fever blister, infertility, hair loss, eye inflammation, dry mouth- me, me, me.
So the journey to start 25mg of steroids daily (a lot!! get ready moon face) and 2000mg of Cellcept…an immune system blocker so mask up begins today.