Cellcept wasn’t working, causing my protein to spike to over 5,000 when it should be under 200. So we switched to Tacrolimus and we wait and see.
Feb1
Cellcept wasn’t working, causing my protein to spike to over 5,000 when it should be under 200. So we switched to Tacrolimus and we wait and see.
Good News
I gained 10 pounds (108 from 98), hair is not longer-but is thicker, feel less fatigue and more joy, no joint pain at all…overall just feeling better.
Bad News
Hair still is breaking-may be early menopause more than Lupus, immune system is struggling to not get sick, latest bloodwork shows the kidneys are still full of protein despite a month of medication, I now have triple the cholesterol that I should have due to the protein.
We are upping the meds and giving it time, so keep the prayers coming.