Tag Archives: journey

Lupus Update and Reality

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I got my 2nd chest xray recently and the results of the awkward 24 hour urine test (so gross to capture my pee for 24 hours straight).

The urine test confirmed high protein so now I go to a kidney doctor to get biopsy and learn more. The doctor should be able to put me on the right drug to calm the disease.

The xray showed no progress so they conclude it is not pneumonia, but rather my scoliosis crowding my lungs. It is weird since I had symptoms of congestion and cough and the antibiotics helped. However, the xray revealed just crowded organs with a suggested follow up to be sure.

Basically we have to calm the disease before it continues to attack more organs. I have seen improvement since being less stressed and off of work. Resting more and doing things I enjoy and relaxing. I gained 9 pounds since May. True blessing!!

So now we explore how to help my kidneys and calm the disease so “Lupus will stop doing what Lupus does which is attack healthy cells and your body.”

The journey continues!

Lupus Gone Wild-Health Update

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The hair loss, weight loss, cramps, stomach issues, swollen joints, ulcers, skin rash and night sweats….were all a result of Lupus.

Not a disease.

Not Rheumatoid Arthritis.

Not Celiac Disease.

The Lupus I have always had, just very active. There are still kidney issues that are likely a result of my Lupus gone wild, but Lupus is the disease that created the drama.

So yeah…this disease sucks.

Who Doesn’t Have 30 Minutes?

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My recent health Journey had me put a hold on intense workouts. For one, I had no calories to burn. For two, the workouts wore me out with my low body weight and muscle burn. Little did I know these last couple of months I had pneumonia and possible kidney disease (we are learning more with tests).

I know a key to handling Lupus is exercise and it workouts are so good for my stress. Add in that at this weight, muscle tone and definition is so nice. And you cannot forget it is swimsuit season so even though I struggle with my bony frame and hair loss…I want to look as good as possible.

Smaller chested brunettešŸ˜‰

Although it feels like I am wasting my Camp Gladiator membership…I have started utilizing the website. Specifically, on demand workouts and quick hitters. 30 minute workouts targeting the areas you want to grow. Who does not have 30 minutes to take care of yourself?

Choose the time, the area of focus, the trainer- it is all up to you. Great for those that cannot go all in, but cannot afford to give up.

Health Journey

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Today is a big day. Now that school is over and I can focus on me, this is day one of figuring out why I am malnourished and “anorexic” as the doctors say.

I noticed a major change in weight last year around March 2021. By June 2021 I was 96 pounds. In August, I had to buy size 0 pants-even had a size girls 16 that fit. Size hangs off me.

I have always been a solid size 6. Size 4 was my ideal, but I had hips and booty. Not anymore.

This was September 2021. Short, but thick hair. I could wear it down.

It is getting thicker, but still breaking and I have not cut my hair at all…so the thinning and length is all on its own. Weight loss, hair loss, and so much more means time to do some tests.

Pray for answers around 2pm today or at least a step in the right direction.