Tag Archives: hope

Biopsy Results

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Today was the virtual consult with the nephrologist. The biopsy revealed the Class 5 Membranous Lupus we were expecting. This was good news since the kidneys were not worse than we thought. The medications will be intense. 2000mg Cellcept daily and 25 mg of steroids daily.

Nervous if similar side effects will occur like last time causing my hair to fall out, lip blisters and overall decline in my weight and health. This drug is most famous for the stomach issues which is a struggle when you are trying to gain weight. Overall, my biggest fear is just struggling to stay thriving. Fatigue is real on these medications! But, this is a fight for a major organ so I will suck it up and follow doctor’s orders.

I serve a mighty God! I serve a God that saves and goes with me. Today made me feel frustrated that we have to get serious with medication right before I start back to school where my stress kicks in the highest…so afraid of going backwards and just feeling beat down when I need to be stepping it up. But I will trust in God’s promise that he goes before me, stay grateful for the good things he has done and remain hopeful for a cure and better tomorrow with Lupus.

Lupus Impact

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Here are just a few of the things an auto immune disease will attack in an attempt to fight off invaders:

Hair-thinning, falling out, bald spots on scalp, dry and brittle

Eyes-itchy, burning, blurry vision, inflammation

Skin-dry, rashes especially on face, psoriasis

Mouth- ulcers (the worst) cavities due to being too dry or too much bacteria

Joints-aches, pains, stiffness, deformities, loss of grip, cannot move arms above head, hard to walk or bend at the knees, hard to dress

Blood-anemic, easy bruising

Reproductive-can cause infertility, dryness, overgrowth of bacteria

Organs-failure of vital ones, hard to breathe, chest pain, lung inflammation

Digestive-weight loss, foods hard to digest, IBS, watch what you eat-sensitivities

Brain-forgetfulness, depression, brain fog

This is a list of things I have endured in my 12 years with this disease.

Thankfully not all at the same time and thankfully meds can help alleviate much of this.

My hope is in Jesus. I am thankful I have a promise of eternity and faithfulness in a cure or in a plan or purpose for my pain. Prayer is powerful.