Tag Archives: health

Just Cycle!

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I love Camp Gladiator, but sometimes you need to mix it up. So happy to share I found cycling! A new gym opened up in Kaufman called Arise. It is more elite with top notch equipment and technology. I have not tried everything, but I am hooked on their cycling!

Hear me now…it is expensive. 20 dollars a class…makes CG look cheap, but it hurts so good! I love you can track your performance, set goals, compete as a team and it is inside! Hot, cold, rainy…you are good!

Recently I found the love of theme classes! Praise and worship class to feed my soul. Lil Wayne to feed my inner hip hop. Lizzo to feed my diva. The music gets me going as I push myself to new records or just release my stress.

Of course, I still love my CG. Recently I found Camp Gladiator on demand workouts and Quick hitters have hit the spot! 30 minutes- you can do anything. No need to carve 2 hours out of your day…just get it done and check it off!

The live part makes it interactive but sometimes you need people so going in person is nice too. Whatever you choose to do to focus on your health…just move!!

You will not regret it!

Which Flare? What does a Lupus flare feel like?

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Today I go to two doctors to check on symptoms of inflammation. One is an eye doctor…my eyes have been on fire lately and the second is my regular check up to see if the Methextrate is working or we need to try something new. Many Lupus drugs have serious side effects, so I need to be careful and check blood work often.

Going to the doctor today got me thinking about all my flares the past ten years. I often get asked “What does a flare feel like?” My response is “Which one?”

My first flare was my worst…achy joints, high fever always, weight loss, fatigue, cold all the time. We started Plaquenil and within three months I was feel good again…a new norm of anemia, infertility and fatigue always, but not hurting.

My second big flare was achy joints, fatigue and hair loss. Patches of bald spots and an itchy scalp that kinda surprised me since I did not know my hair was connected to auto immune issues

My third big flare was my scariest. Lung inflammation. I felt like I was going to have a heart attack. I could not catch my breath and my chest hurt. Again, no clue my lungs could be connected to my Lupus.

This one has lasted the longest…mirrored more Rheumatoid arthritis than Lupus. It caused me to change my meds to focus on joint pain rather than fatigue. It caused my hands to go crooked and surprisingly has impacted my eyes. No clue if it is inflammation or allergy or random coincidence but my eyes have been burning. This flare also impacted my weight and fatigue and now thinning hair. A big surprise is the new inflammation in my stomach…food does not process which makes me feel malnourished.

The crazy thing is insurance causes me to need referrals and it is hard to know what can be treated with a GP versus a specialist. So much is determined by Lupus and is just confusing. So my goal today is to get answers and maybe a better plan. I feel good mentally, but Lupus can cause depression too and I have had that this time as well. Pray that God leads me to answers and wisdom today!

I am blessed with all the advancements in this tricky disease. I am learning to accept myself at my lowest weight, infertile, bruised from blood thinners, thin hair that does not grow out and feeling tired all the time. Learning I am who I am with this disease. No one can truly understand it through my eyes and what I go through each day to make it to the next as a mom and teacher and wife…but God is using this for His glory! Adoption and more has been a gift in this and I am not dead. I have felt like dying is near at times or even frustrated that my quality of life at 42 is so different …if this is 42 what will 62 feel like…will I live to see 72? Does my child get the mother he deserves?

In it all, I will take this life and live it awake. I will appreciate what I do have through a support system and medical team. God is good!

Today I am focusing on Psalm 136:1. I am giving thanks to God. Thankful for my body. Thankful for my medical team. Thankful for prescription drugs. Thankful for a supportive husband. Thankful for prayer. Thankful for days to take off for the doctor. Thankful for the beauty in the ashes. Thankful on purpose.

January 1st is just another day…

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To me January 1st is just another day. Whatever vision you had on December 31st could be done then…why wait? Why be dramatic about January 1st…it seems like it is setting one up to get on this hig emotional high then fail. However, I do love graduations to reflect and endings call for new beginnings.

Four areas I want to examine:

Relationships

Relationship goals…lifelong friends where you can be vulnerable and fail, but they pick you up.

Spiritual Habits

calendar of praying for a child

Health-mind and physical. I am hopeful to get answers to my weight loss, gain some weight, and not let inflammation bring me down.

My CG trainer and my spin class teacher- mix up the workouts!

Reading-both to grow and for pleasure

Bible Recap Reading Plan

I see these four areas as important to me and areas where I can grow. Work is important too and I have goals there…but at my stage of life…so much time is spent on making a name for myself as a teacher that it is exhausting. Sometimes I just need to live my life and bring that to the curriculum I know.

Teacher friends
Always a learner

My school family!

So today, give yourself grace. Notice the baby steps to be better, but do not suffocate yourself with strict guidelines. Enjoy the journey!

Be you and embrace it!
Appreciate where you are! Some may see this as being complacent but I see it as being content. You are enough!
I love hearing feedback from people I trust, but you cannot make everyone happy.
Move forward afraid.
This is a fun tool to track exercise or books read or classes attended…

Happy 2022. The year I blog until I get busy again!

The face I make returning to school after a long break!

Lupus and Keeping it Real

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I am going to be honest. I will never know if I have Covid because the symptoms feel like Lupus. Yesterday I began to get what felt like a migraine. Light hurt my eyes and I had a massive headache. Started running a fever and felt achy then began to just feel worn down.

Was I getting sick? Who knows but it hurt and hurt bad. I took a bunch of meds…Sinus pills, Advil, Prednisone and did a nasal rinse. Slowly starting to feel better, but if I ever had Covid then I would have no clue without a test.

Lupus can be tricky like that. Deceptive. Sneaky. Painful. If you suffer from an autoimmune disease I feel for you…it is hard especially with Covid around right now!

Word of the Year

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For the past 8 years, rather than have a resolution, I have listened for a word to guide me. It is a spiritual thing. God chooses it and most years it is a word that stretches me.

2020 was vulnerable. It led me to foster care, Covid and Brene Brown.

2021 was grace. It guided me through a tough season in marriage, addiction and boundaries at work.

2022 will be Joy! Joy in the midst of circumstances. Joy when I feel it and when I don’t.

Joy if this beauty survives another year and Joy if she does not. Joy if I get better and Joy if it gets worse…Joy in a successful or failed marriage. Joy because of Jesus…nothing more or less.

Health Update

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Still no weight loss answers, but up to 102 from 98 pounds so go me! Slowly starting to get back into Camp Gladiator, but added the virtual option so I can go at my own pace. Dressing the weight loss since it is my new normal. Hoping and praying it is nothing more serious and I am fool for not seeking the answers. I feel light headed sometimes but I am small so that makes sense. Really striving to be closer to Jesus and hoping his wisdom brings me clarity to seek the right doctors.

Lupus and inflammation will always be in my story, but hoping to get on the right meds to feel good and take care of my temple.

Pray with me!

Healthy Changes

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So over the past few months I have continued to lose weight without trying. Sounds awesome, but not when you look sick and you are down to a size 0 and under 100 pounds. Only in small outfits does it look sexy…in most clothes I look ill. So I have had to pause Camp Gladiator so I can visit doctors and figure out the root. When you need every calorie, you have zero to burn!

So far I have been to three doctors and received an ultrasound of my thyroid. Gastronologist is next along with a high protein diet, delivered meal plan so I snack all day and eat and protein shakes from Crandall Nutrition. Again, blessed to not worry about losing pounds, but never Google unexplained weight loss.. it is scary! Join me in praying for some direction!

Finally, in all the day to day, I am leaning into my self. Put a pause in working on my relationships, and am focusing on God and my mental health. Sadly, I tend to lose me in us and it is time to look at who God says I am.

Turning 42 flipped a switch. Who am I? Where do I want to be in a year? Who do I want by my side if I have to battle a deadly disease tomorrow? No time to question loyalty…I need to know my team and live in it! Stay tuned for Julia 42.0!

In Lupus related news, I am now on Methextrate and off Plaquenil. Over time, my symptoms began to look more like RA and the joint pain became too much. I now have side effects of headaches and mouth ulcers, but feel better than ever joint-wise. Kinda scared to find out what 62 feels like since 42 already feels like 92, but believing in a cure and a good Lord comeback!

Camp Gladiator Update

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You can tell I am a teacher since I have the time for three posts in a day!

Last summer I tried a new workout to stay out of a pandemic funk, heal my body from the negative effects of Lupus, build muscle and please my husband who loves fitness (gotta be honest). A year later and I am still going strong!

I find I look forward to it most weeks and I am seeing results. I have built new friendships and look better in my jeans so there is a winning all around. Added bonus love is I am seeing results with energy teas and protein shakes…all of it together and I can see and feel the difference.

I am a small girl so I am hoping the protein shakes will help me to look stronger, but I love how I feel and that was my biggest goal from the beginning.

Camp Gladiator promotions are based on referrals and I have none so if you want to try it then I can get you the info! Virtual options make a workout from anywhere possible! Even if you have another workout you love, just keep moving and I will be cheering you on all the way. Summer body is no joke and bikinis can be brutal…we are all doing the best we can!

Lupus Limits…But Does Not Stop

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I must admit I am one of the fortunate ones living with Lupus. My symptoms are mild, the meds I take are working, I was diagnosed quickly, my vital organs are unaffected; seriously, I am fortunate. My Lupus mostly involves my nervous system, my endocrine system and reproductive system. All those systems or words I would have never known before my diagnosis so basically my nerves, blood and ability to have babies. When I flare and I do weekly, I get fatigued due to chronic anemia, my joints ache like a 90 year old man, and my fingers turn white or purple. Right now my flare includes Pleurisy which means the lining of my lungs are inflamed…the sun is my enemy. Through it all I am grateful because my God has used it for good. This disease brought me a child through adoption that I would not have ever met, the sick days help me to appreciate the healthy days and my experience has helped me to encourage others going through similar things. To be in my low thirties with a chronic illness triggered by such common things as the sun and stress is intense, but I am alive and choosing to stay alive (there are some flares so bad I have felt like death) and choosing to live my life rather than let it live me.

Insert soccer.

When I was being diagnosed I told my doctor I played soccer. His response: not anymore. He went on to tell me that my blood levels showed low iron and chronic anemia so any major physical activity was dangerous. I took a few games off, but continued to play. The fatigue was intense after sunny games but we always had subs so it worked. However in the fall of 2016 I was in a major flare and for the first time in 15 seasons I had to say I could not play. It was defeating as I knew I was really sick to skip soccer. 

That was 2 years ago. I probably felt good enough to play again, but new players join and your team changes.  So I was not asked the next season and then I think the team took a season off so when I got the text to play I considered it. My biggest concern was that my lungs are inflamed right now which feels like a heart attack while resting and like an asthma attack when running-not too smart to say yes, but it will go away.  I also knew it would be hard after not playing two years so I had to speak to my hubs since he would be watching the kid and me if I get sick, but when he cheered me on I went for it.

Last night was the first game and it felt good. I was nervous all day, resting my body, drinking water, taking medicine…but it all felt good.  My biggest fear was my inflamed lungs and they were tight after long sprints, but two subs on the side could be called in at any time.  We won and I got some good touches, but most importantly I played. I was fearful two years ago that I never would again. So unsure if it was a good idea that I kept it a secret so no one could talk me out of it. But I feel okay the day after and since the games are at night, I think swimming will kill me before soccer 🤪 

Lupus does limit me, but it will not stop me. Soccer is what I do for myself. On the field I feel my sexiest and my mind is cleared.  I feel badass to be 38 and still playing. The best part is I challenge my mind and body and grow closer to the Lord as I praise him for the chance to show good sportsmanship and meet others with the same passion. Today I am grateful to be a soccer player living with Lupus again. My call of action to those without chronic diseases is to go out use your body. It is a beautiful thing of science and should not be wasted. Do not waste your health!