I got my 2nd chest xray recently and the results of the awkward 24 hour urine test (so gross to capture my pee for 24 hours straight).
The urine test confirmed high protein so now I go to a kidney doctor to get biopsy and learn more. The doctor should be able to put me on the right drug to calm the disease.
The xray showed no progress so they conclude it is not pneumonia, but rather my scoliosis crowding my lungs. It is weird since I had symptoms of congestion and cough and the antibiotics helped. However, the xray revealed just crowded organs with a suggested follow up to be sure.
Basically we have to calm the disease before it continues to attack more organs. I have seen improvement since being less stressed and off of work. Resting more and doing things I enjoy and relaxing. I gained 9 pounds since May. True blessing!!
So now we explore how to help my kidneys and calm the disease so “Lupus will stop doing what Lupus does which is attack healthy cells and your body.”
Lupus is sneaky. It mask itself as several diseases. It is hard to diagnose, has no cure, and even more challenging to treat. No one experiences Lupus the same way. No doctor has quite figured it out. It is your body attacking itself.
Fatigue, joint pain, rash…the main symptoms, but there are so many more! Some that only appear when you get sick. Getting sick is tricky because it looks like a Lupus flare, but could be so much more just hard to tell.
So hug your friends with autoimmune diseases. Their pain and hurt is real and hard to share since they do not look sick, but feel sick all the time. Their good days are some of your worst. Stress is a trigger which some jobs and relationships are stressful all the time. Working out helps, but also makes you even more tired. You.just.can’t.win.
You have it long enough and you no longer want to complain, so make sure they do not have to…just love on them all the time.
My recent health Journey had me put a hold on intense workouts. For one, I had no calories to burn. For two, the workouts wore me out with my low body weight and muscle burn. Little did I know these last couple of months I had pneumonia and possible kidney disease (we are learning more with tests).
I know a key to handling Lupus is exercise and it workouts are so good for my stress. Add in that at this weight, muscle tone and definition is so nice. And you cannot forget it is swimsuit season so even though I struggle with my bony frame and hair loss…I want to look as good as possible.
Although it feels like I am wasting my Camp Gladiator membership…I have started utilizing the website. Specifically, on demand workouts and quick hitters. 30 minute workouts targeting the areas you want to grow. Who does not have 30 minutes to take care of yourself?
Choose the time, the area of focus, the trainer- it is all up to you. Great for those that cannot go all in, but cannot afford to give up.
Happy Adoption Day to Callen! 9 years ago yesterday we made his Adoption official in a courthouse in Houston!
Had another appointment with a Rheumatologist and it is getting expensive with co-pays! Found more protein in the urine so now we do a 24 hour Urine test which is gross and kinda tedious. Holing to find more answers!
I am sick. Lupus does that to you. Most days I do not mind. Most days my disease is manageable. On the hard days, it sucks, but all in all I am blessed. My struggle is silent. I go to work daily. I rarely complain. The people who know the truth are my son and husband. They feel the weight of my lack of energy and overall fatigue. Sad, but true. My job gets the best I can offer while my family suffers.
I started with Plaquenil and it worked until it didn’t. Methotrexate was a no go after a few months. Cellcept lasted a month, but I am stopping it due to excessive hair loss. I am sick, but I refuse to look sick.
This was a good pic of me in November. Hard to believe that was 3 months ago.
I have such thick hair that the hair loss is still somewhat disguisable, but I see it and feel it.
This is Lupus. It is sneaky and complicated and can bring even a confident person to their knees. I am stopping Cellcept until we can start something else. I am willing to endure the temporary pain. Pray with me as we figure this out. I think Benalysta may be next.
I want to start by saying that this year for me is WAY better than last year, so I am thankful. Last year juggling virtual teaching and student absences while trying to maintain a gradebook was intense. I will always be grateful for my mental health this year, however teachers across the country are abandoning education at a massive rate. I struggled to put into words why…but then a teacher I follow on Twitter said it perfectly…
The teaching game has changed, but the mindsets of those making the decisions and laws have not. They want to “catch up” kids to make them what they use to be and these kids are not what they use to be. Families have changed, education has changed and now laws need to change. The stress being put on teachers to test and perform is breaking our spirits as more hours of tutoring, documentation and building up their SEL is exhausting. I made this TikTok last year I think of one of my favorite Christian songs called Truth Be Known. It sums us up well…looking good, but feeling weak.
God is my source of hope and strength so I know my foundation is firm. I have endured this business for 20 years so I know I can endure this valley, but those that do not know any different are walking out at an alarming rate. I get it. I hate it, but I get it.
On another note, wow how Lupus has changed my hair. No clue when my hair began to fall out and thin, but seeing my hair in this Tik Tok is shocking…long, full of volume…this is it today
Not without hope, but definitely not what it was. Crazy how a medicated auto immune disease can do that. My devo today said God has a purpose for my broken body and I am putting all my faith, hope and love that it is true.
I love Camp Gladiator, but sometimes you need to mix it up. So happy to share I found cycling! A new gym opened up in Kaufman called Arise. It is more elite with top notch equipment and technology. I have not tried everything, but I am hooked on their cycling!
Hear me now…it is expensive. 20 dollars a class…makes CG look cheap, but it hurts so good! I love you can track your performance, set goals, compete as a team and it is inside! Hot, cold, rainy…you are good!
Recently I found the love of theme classes! Praise and worship class to feed my soul. Lil Wayne to feed my inner hip hop. Lizzo to feed my diva. The music gets me going as I push myself to new records or just release my stress.
Of course, I still love my CG. Recently I found Camp Gladiator on demand workouts and Quick hitters have hit the spot! 30 minutes- you can do anything. No need to carve 2 hours out of your day…just get it done and check it off!
The live part makes it interactive but sometimes you need people so going in person is nice too. Whatever you choose to do to focus on your health…just move!!
Today I go to two doctors to check on symptoms of inflammation. One is an eye doctor…my eyes have been on fire lately and the second is my regular check up to see if the Methextrate is working or we need to try something new. Many Lupus drugs have serious side effects, so I need to be careful and check blood work often.
Going to the doctor today got me thinking about all my flares the past ten years. I often get asked “What does a flare feel like?” My response is “Which one?”
My first flare was my worst…achy joints, high fever always, weight loss, fatigue, cold all the time. We started Plaquenil and within three months I was feel good again…a new norm of anemia, infertility and fatigue always, but not hurting.
My second big flare was achy joints, fatigue and hair loss. Patches of bald spots and an itchy scalp that kinda surprised me since I did not know my hair was connected to auto immune issues
My third big flare was my scariest. Lung inflammation. I felt like I was going to have a heart attack. I could not catch my breath and my chest hurt. Again, no clue my lungs could be connected to my Lupus.
This one has lasted the longest…mirrored more Rheumatoid arthritis than Lupus. It caused me to change my meds to focus on joint pain rather than fatigue. It caused my hands to go crooked and surprisingly has impacted my eyes. No clue if it is inflammation or allergy or random coincidence but my eyes have been burning. This flare also impacted my weight and fatigue and now thinning hair. A big surprise is the new inflammation in my stomach…food does not process which makes me feel malnourished.
The crazy thing is insurance causes me to need referrals and it is hard to know what can be treated with a GP versus a specialist. So much is determined by Lupus and is just confusing. So my goal today is to get answers and maybe a better plan. I feel good mentally, but Lupus can cause depression too and I have had that this time as well. Pray that God leads me to answers and wisdom today!
I am blessed with all the advancements in this tricky disease. I am learning to accept myself at my lowest weight, infertile, bruised from blood thinners, thin hair that does not grow out and feeling tired all the time. Learning I am who I am with this disease. No one can truly understand it through my eyes and what I go through each day to make it to the next as a mom and teacher and wife…but God is using this for His glory! Adoption and more has been a gift in this and I am not dead. I have felt like dying is near at times or even frustrated that my quality of life at 42 is so different …if this is 42 what will 62 feel like…will I live to see 72? Does my child get the mother he deserves?
In it all, I will take this life and live it awake. I will appreciate what I do have through a support system and medical team. God is good!
Today I am focusing on Psalm 136:1. I am giving thanks to God. Thankful for my body. Thankful for my medical team. Thankful for prescription drugs. Thankful for a supportive husband. Thankful for prayer. Thankful for days to take off for the doctor. Thankful for the beauty in the ashes. Thankful on purpose.