The God of your disappointments is still your God. The hardest part is letting go of the pen so He can write the narrative.
I prefer to see the new year less as an event and more like an opportunity. It is after all just the next day to a new calendar year. I mean what if we did this much goal setting each week or month? How much more intentional could we be?
But I love reflecting and seeing the big picture in deciding what works and what does not and see it as an opportunity to get uncomfortable and do something about it.
Cheers to the unseen opportunities of 2023! May God be at the center of it all and may you find your worth, value and acceptance by being in awe of Him!
The Cellcept is working. Glory to God for an answer to prayer. Two months ago, blood tests showed no change in the protein in the kidneys. We decided the “wait and see” method. Thankful we did. Most recent reports show a huge drop in protein (4000 to 1500). Still a lot of protein, but decrease shows promise. I still do not feel 100%, but I never will with Lupus. I do have lots of reasons to keep hoping and fighting and praying for a cure.
Today was the virtual consult with the nephrologist. The biopsy revealed the Class 5 Membranous Lupus we were expecting. This was good news since the kidneys were not worse than we thought. The medications will be intense. 2000mg Cellcept daily and 25 mg of steroids daily.
Nervous if similar side effects will occur like last time causing my hair to fall out, lip blisters and overall decline in my weight and health. This drug is most famous for the stomach issues which is a struggle when you are trying to gain weight. Overall, my biggest fear is just struggling to stay thriving. Fatigue is real on these medications! But, this is a fight for a major organ so I will suck it up and follow doctor’s orders.
I serve a mighty God! I serve a God that saves and goes with me. Today made me feel frustrated that we have to get serious with medication right before I start back to school where my stress kicks in the highest…so afraid of going backwards and just feeling beat down when I need to be stepping it up. But I will trust in God’s promise that he goes before me, stay grateful for the good things he has done and remain hopeful for a cure and better tomorrow with Lupus.
I do it every time.
Hear a diagnosis then Google it to death.
What I really struggle with is fear, control, the unknown and what-ifs.
God has the answer.
When will I learn to start with Him?
He knows, He cares, He loves.
If you want to know how much God loves his children, watch how Callen’s Paw Paw loves him. It is real, genuine and limitless. God loves you this much and more. It is indescribable!
Happy Father’s Day!
My son has autism.
My son has ADHD.
My son has epilepsy.
My son’s IQ is too low to be considered having a learning disability.
True story. Too low to have a learning disability. If my son, did not have the other health impairment a public school system would not qualify him for special education because he does not have enough strengths to receive services.
Let that sink in. “Not enough strengths”. As a teacher this breaks my heart. My students that get this information are basically being told find a good trade or marry a rich spouse because according to the SPED system you are too low to receive our help. We cannot help you.
Low IQ is 70-79- my son has a 54. But if you ever met him then you would know something is different but 54 does not describe him- autism and distractedness make a difference on these tests. Combine that with lack of motivation and in his world “these tests suck”. STAAR is a joke for him-he cannot logically reason or read those words (mind you in a home with two parents with a masters degrees)…he is below grade level with an other health impairment. The test does not fit him.
The state should differentiate their testing. Supports are not enough for some kids.
God knew what this kid would need. God knew what our education and finances could offer that he was not born into. God knew what faith, hope, love, early intervention and stubbornness could provide. God chose us to adopt him…a hard calling, but an important one.
You see my child thinks outside the box. He sees things not for what they are, but what they can become. He sees a rinse cup and creates false teeth (it works). He sees a happy meal can be turned into a computer. He sees foil can create 101 different toys. He will make the world better….mark my words….by creating something so simple, but no one saw it.
Someday public education will rethink their testing and accountability but until then…
Never count out creativity.
We said good-bye to our dog of 16 years this week.
To be honest, it was time, but that does not make it easier. She was deaf, blind and like her sister suffering from kidney disease.
We knew it was coming, but still not ready. It all happened quickly while we were in the Bahamas, but thankful we could make it back home so we could be together.
Explaining death to a 9 year old never is easy, but it gives us more opportunity to talk about God and heaven and Jesus.
The hurt is real, but so is the beauty of a best friend. The creature at my feet each night and the unconditional love in the loneliness. The loyal companion of my adult years. I miss her busting through the closet or barging in on my bathtime. Even miss the way she did anything to get to food…I miss her. But the pain is worth the 16 years of joy and the happy times of her youth.
One of my favorite things to do is work in the preschool at church. I get to love on babies, play with toddlers, tell little ones about Jesus and SHOW them God’s love on display. Tell each kid that Jesus knows his or her by name.
I get to give parents an hour to worship undistracted by little ones. My time with their children help ls them to feed their souls. Is it loud and crazy…oh yes. But is it important?
Nothing else matters.
The kingdom belongs to these littles. We must be careful to train up the next generation so the church carries on until He returns.
Be the church wherever you fit in using whatever gift He bestowed upon you.
It is everything right now.
This is a pic I saw on our class field trip to the Wetlands. It was an illustration of how the roots of the plot are anchored in the soil and will not be moved. It was beautiful and a visual of who I am in Christ.
I am rooted and anchored in the soil of God. His nutrients grow me as I am firmly planted in him. My roots keep me from flying away in the wind or drowning in the rain. Lord willing I will produce fruit or flowers as I abide in Him. What a brilliant illustration of our journey with God.
Rooted in Him I am.