My plans are worthless. I learned that in Covid, then things got back to “normal-ish” and I forgot and now I am reminded in this Winter storm again. My plans are worthless.
My calendar is a wish list and a “I hope to do…”. My dad would always say to EVERY thing “If it is the Lord’s will..” It drove me crazy, but it is more right than wrong. My calendar was slashed again with this Texas ice storm and I am not complaining. I have been blessed with the essentials and luxuries that I appreciate now more than ever. Do not take it for granted, Julia…heat, electricity, water…they are gifts!
As we, Lord willing, start wrapping this Winter Storm up I am reminded we are made to follow Him. We were created to worship.
Created to obey.
Created to trust.
Created to sin.
Created to need a Savior and one willing to sacrifice.
Created to thank Him and tell others about this gift.
I must admit I am one of the fortunate ones living with Lupus. My symptoms are mild, the meds I take are working, I was diagnosed quickly, my vital organs are unaffected; seriously, I am fortunate. My Lupus mostly involves my nervous system, my endocrine system and reproductive system. All those systems or words I would have never known before my diagnosis so basically my nerves, blood and ability to have babies. When I flare and I do weekly, I get fatigued due to chronic anemia, my joints ache like a 90 year old man, and my fingers turn white or purple. Right now my flare includes Pleurisy which means the lining of my lungs are inflamed…the sun is my enemy. Through it all I am grateful because my God has used it for good. This disease brought me a child through adoption that I would not have ever met, the sick days help me to appreciate the healthy days and my experience has helped me to encourage others going through similar things. To be in my low thirties with a chronic illness triggered by such common things as the sun and stress is intense, but I am alive and choosing to stay alive (there are some flares so bad I have felt like death) and choosing to live my life rather than let it live me.
When I was being diagnosed I told my doctor I played soccer. His response: not anymore. He went on to tell me that my blood levels showed low iron and chronic anemia so any major physical activity was dangerous. I took a few games off, but continued to play. The fatigue was intense after sunny games but we always had subs so it worked. However in the fall of 2016 I was in a major flare and for the first time in 15 seasons I had to say I could not play. It was defeating as I knew I was really sick to skip soccer.
That was 2 years ago. I probably felt good enough to play again, but new players join and your team changes. So I was not asked the next season and then I think the team took a season off so when I got the text to play I considered it. My biggest concern was that my lungs are inflamed right now which feels like a heart attack while resting and like an asthma attack when running-not too smart to say yes, but it will go away. I also knew it would be hard after not playing two years so I had to speak to my hubs since he would be watching the kid and me if I get sick, but when he cheered me on I went for it.
Last night was the first game and it felt good. I was nervous all day, resting my body, drinking water, taking medicine…but it all felt good. My biggest fear was my inflamed lungs and they were tight after long sprints, but two subs on the side could be called in at any time. We won and I got some good touches, but most importantly I played. I was fearful two years ago that I never would again. So unsure if it was a good idea that I kept it a secret so no one could talk me out of it. But I feel okay the day after and since the games are at night, I think swimming will kill me before soccer 🤪
Lupus does limit me, but it will not stop me. Soccer is what I do for myself. On the field I feel my sexiest and my mind is cleared. I feel badass to be 38 and still playing. The best part is I challenge my mind and body and grow closer to the Lord as I praise him for the chance to show good sportsmanship and meet others with the same passion. Today I am grateful to be a soccer player living with Lupus again. My call of action to those without chronic diseases is to go out use your body. It is a beautiful thing of science and should not be wasted. Do not waste your health!