Category Archives: Long drives

Looking sick vs Being sick

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I am sick. Lupus does that to you. Most days I do not mind. Most days my disease is manageable. On the hard days, it sucks, but all in all I am blessed. My struggle is silent. I go to work daily. I rarely complain. The people who know the truth are my son and husband. They feel the weight of my lack of energy and overall fatigue. Sad, but true. My job gets the best I can offer while my family suffers.

I started with Plaquenil and it worked until it didn’t. Methotrexate was a no go after a few months. Cellcept lasted a month, but I am stopping it due to excessive hair loss. I am sick, but I refuse to look sick.

This was a good pic of me in November. Hard to believe that was 3 months ago.

I have such thick hair that the hair loss is still somewhat disguisable, but I see it and feel it.

This is Lupus. It is sneaky and complicated and can bring even a confident person to their knees. I am stopping Cellcept until we can start something else. I am willing to endure the temporary pain. Pray with me as we figure this out. I think Benalysta may be next.

Paying for an Experience

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My son has been obsessed with dinosaurs lately. We can thank Jurassic World and Ryan’s toy reviews for that. When I learned the Jurassic exhibit was in Dallas, but required over 25 dollars a ticket and over an hour drive…I stopped to consider if this event was worth it.

It was.

The experience was worth the cost. The opportunity to be together as a family. The fact my husband took off of work-shock! The chance to laugh when the unexpected occurred. The feeling of awe as the robots came to life. The smiles, the laughs, the conversations on the way home. The way he tells everyone about it.

Was it costly? Yes. Was it only an hour? Yes. Will we remember it for a lifetime? I hope so.

Choose.the.experience.

We did.