Cellcept wasn’t working, causing my protein to spike to over 5,000 when it should be under 200. So we switched to Tacrolimus and we wait and see.
Feb1
Lupus update
Category Archives: Kidney concerns
Jan3
Work
Returning to teaching is never easy, especially since I am still struggling with an infection, enlarged spleen, kidney problems, and my voice is still shaky after losing it for 3 weeks! My Lupus body is fighting something. Cellcept suppresses my immune system, so it is hitting me hard. But I get one of the best jobs with 2 weeks off to rest and recover and I am grateful.
Sep17
Good News Bad News
Good News
I gained 10 pounds (108 from 98), hair is not longer-but is thicker, feel less fatigue and more joy, no joint pain at all…overall just feeling better.
Bad News
Hair still is breaking-may be early menopause more than Lupus, immune system is struggling to not get sick, latest bloodwork shows the kidneys are still full of protein despite a month of medication, I now have triple the cholesterol that I should have due to the protein.
We are upping the meds and giving it time, so keep the prayers coming.
intunewithmyautoimmune 