Category Archives: journey

Lupus Update and Reality

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I got my 2nd chest xray recently and the results of the awkward 24 hour urine test (so gross to capture my pee for 24 hours straight).

The urine test confirmed high protein so now I go to a kidney doctor to get biopsy and learn more. The doctor should be able to put me on the right drug to calm the disease.

The xray showed no progress so they conclude it is not pneumonia, but rather my scoliosis crowding my lungs. It is weird since I had symptoms of congestion and cough and the antibiotics helped. However, the xray revealed just crowded organs with a suggested follow up to be sure.

Basically we have to calm the disease before it continues to attack more organs. I have seen improvement since being less stressed and off of work. Resting more and doing things I enjoy and relaxing. I gained 9 pounds since May. True blessing!!

So now we explore how to help my kidneys and calm the disease so “Lupus will stop doing what Lupus does which is attack healthy cells and your body.”

The journey continues!

Perspective is Everything

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Summer fun can be exhausting. Getting up early, going from lesson to playdate to camp…being in the car from 30 to 45 minutes at a time depending on traffic. Doing all I can to make memories and do all the fun stuff while school is out. Keeping cool in this heat…fun, but tiresome.

I was expressing this thought to my son’s tutor whom is a widow and all three of her boys are grown and out of the house. Her response surprised me.

She said the busyness traveling in the car is what she missed the most about raising kids. She explained the time she spent talking, laughing and going to all the places for the summer are the memories she holds dear to her heart. Being all together in the car is priceless.

It made me stop and think the thing that exhausts me is what she misses. I should learn from her and change my perspective and find joy in this phase of life. Appreciate the talking, the questions and the places we travel together. Value this moment in motherhood.

Don’t miss the memories we are making. God has given me this child for this moment and I refuse to miss this opportunity by not appreciating how blessed I am. So thankful this lady could unknowingly mentor me and change my perspective before it was too late.

Who Doesn’t Have 30 Minutes?

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My recent health Journey had me put a hold on intense workouts. For one, I had no calories to burn. For two, the workouts wore me out with my low body weight and muscle burn. Little did I know these last couple of months I had pneumonia and possible kidney disease (we are learning more with tests).

I know a key to handling Lupus is exercise and it workouts are so good for my stress. Add in that at this weight, muscle tone and definition is so nice. And you cannot forget it is swimsuit season so even though I struggle with my bony frame and hair loss…I want to look as good as possible.

Smaller chested brunette๐Ÿ˜‰

Although it feels like I am wasting my Camp Gladiator membership…I have started utilizing the website. Specifically, on demand workouts and quick hitters. 30 minute workouts targeting the areas you want to grow. Who does not have 30 minutes to take care of yourself?

Choose the time, the area of focus, the trainer- it is all up to you. Great for those that cannot go all in, but cannot afford to give up.

Health Journey 2

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Doctor visit went well. She saw my concern. My situation is a wasting away disease with no cure but to address the sickness that is causing it.

These pics are a couple years apart but you can see my concern. This size is not me.

I am getting a chest xray, liver screen, kidney screen, cardiac screen, thyroid screen and tons of bloodwork. 9 vials. If all this comes back inconclusive then we will treat the Rheumatoid Arthritis or and Lupus.

So now we wait.