I love Camp Gladiator, but sometimes you need to mix it up. So happy to share I found cycling! A new gym opened up in Kaufman called Arise. It is more elite with top notch equipment and technology. I have not tried everything, but I am hooked on their cycling!
Hear me now…it is expensive. 20 dollars a class…makes CG look cheap, but it hurts so good! I love you can track your performance, set goals, compete as a team and it is inside! Hot, cold, rainy…you are good!
Recently I found the love of theme classes! Praise and worship class to feed my soul. Lil Wayne to feed my inner hip hop. Lizzo to feed my diva. The music gets me going as I push myself to new records or just release my stress.
Of course, I still love my CG. Recently I found Camp Gladiator on demand workouts and Quick hitters have hit the spot! 30 minutes- you can do anything. No need to carve 2 hours out of your day…just get it done and check it off!
The live part makes it interactive but sometimes you need people so going in person is nice too. Whatever you choose to do to focus on your health…just move!!
Today I go to two doctors to check on symptoms of inflammation. One is an eye doctor…my eyes have been on fire lately and the second is my regular check up to see if the Methextrate is working or we need to try something new. Many Lupus drugs have serious side effects, so I need to be careful and check blood work often.
Going to the doctor today got me thinking about all my flares the past ten years. I often get asked “What does a flare feel like?” My response is “Which one?”
My first flare was my worst…achy joints, high fever always, weight loss, fatigue, cold all the time. We started Plaquenil and within three months I was feel good again…a new norm of anemia, infertility and fatigue always, but not hurting.
My second big flare was achy joints, fatigue and hair loss. Patches of bald spots and an itchy scalp that kinda surprised me since I did not know my hair was connected to auto immune issues
My third big flare was my scariest. Lung inflammation. I felt like I was going to have a heart attack. I could not catch my breath and my chest hurt. Again, no clue my lungs could be connected to my Lupus.
This one has lasted the longest…mirrored more Rheumatoid arthritis than Lupus. It caused me to change my meds to focus on joint pain rather than fatigue. It caused my hands to go crooked and surprisingly has impacted my eyes. No clue if it is inflammation or allergy or random coincidence but my eyes have been burning. This flare also impacted my weight and fatigue and now thinning hair. A big surprise is the new inflammation in my stomach…food does not process which makes me feel malnourished.
The crazy thing is insurance causes me to need referrals and it is hard to know what can be treated with a GP versus a specialist. So much is determined by Lupus and is just confusing. So my goal today is to get answers and maybe a better plan. I feel good mentally, but Lupus can cause depression too and I have had that this time as well. Pray that God leads me to answers and wisdom today!
I am blessed with all the advancements in this tricky disease. I am learning to accept myself at my lowest weight, infertile, bruised from blood thinners, thin hair that does not grow out and feeling tired all the time. Learning I am who I am with this disease. No one can truly understand it through my eyes and what I go through each day to make it to the next as a mom and teacher and wife…but God is using this for His glory! Adoption and more has been a gift in this and I am not dead. I have felt like dying is near at times or even frustrated that my quality of life at 42 is so different …if this is 42 what will 62 feel like…will I live to see 72? Does my child get the mother he deserves?
In it all, I will take this life and live it awake. I will appreciate what I do have through a support system and medical team. God is good!
Today I am focusing on Psalm 136:1. I am giving thanks to God. Thankful for my body. Thankful for my medical team. Thankful for prescription drugs. Thankful for a supportive husband. Thankful for prayer. Thankful for days to take off for the doctor. Thankful for the beauty in the ashes. Thankful on purpose.
I am going to be honest. I will never know if I have Covid because the symptoms feel like Lupus. Yesterday I began to get what felt like a migraine. Light hurt my eyes and I had a massive headache. Started running a fever and felt achy then began to just feel worn down.
Was I getting sick? Who knows but it hurt and hurt bad. I took a bunch of meds…Sinus pills, Advil, Prednisone and did a nasal rinse. Slowly starting to feel better, but if I ever had Covid then I would have no clue without a test.
Lupus can be tricky like that. Deceptive. Sneaky. Painful. If you suffer from an autoimmune disease I feel for you…it is hard especially with Covid around right now!
Still no weight loss answers, but up to 102 from 98 pounds so go me! Slowly starting to get back into Camp Gladiator, but added the virtual option so I can go at my own pace. Dressing the weight loss since it is my new normal. Hoping and praying it is nothing more serious and I am fool for not seeking the answers. I feel light headed sometimes but I am small so that makes sense. Really striving to be closer to Jesus and hoping his wisdom brings me clarity to seek the right doctors.
Lupus and inflammation will always be in my story, but hoping to get on the right meds to feel good and take care of my temple.
2020 was the year of being stuck. It even shows it in the numbers…not going up, not going down…stuck with two of the same numbers: 2020. Stuck at home, stuck out of the gym, stuck out of the bar…stuck without family. Stuck!
So here we are in 2021 and I would like to believe this is the year of moving forward, making progress taking the next step…it is even in the numbers as well. What comes after 20? 21! Turning a new year does not magically change things in our lives, but it gives us new hope and new vision and I pray that for all reading this, 2021 gives you more of the good stuff.
I pray it gives more opportunities, more clarity and more more promise of the good things yet to come. For me, that is more therapy in the areas I need to develop new habits and mindsets; More working out and putting into my body the fuel that sustains. More quality time with the relationships that feed what is good, noble, honest and true. Finally, more falling in love with my Creator and King. More knowing who He is and how He created me to serve Him.
The year of 2020 had great purpose in our stuckness…but 2021 is of great significance too! No accident the numbers fall in line in an order of progression. It is time…progress is waiting!
2020 was the year our trauma was exposed. The year we had a moment to step back and see what God was seeing. Busyness. Greed. Selfishness. Chasing after the wind to gain power, success, money…but losing family, health and righteousness.
2021 can be the year to repair what the trauma exposed. Relationships with family, clarity in our mission, a new way of doing things. A greater focus on what matters and what you really “need” to thrive. God’s way is simple, but costs us everything. God’s way brings life.
2021 is the year of new habits. New mindsets that 2020 revealed are needed. Mindsets of humility, grace, health, knowledge of God’s word, seeing trials as a process for change.
This year starts some new healthy habits that will be game changers.
1. Reading the entire Bible. God gives us direct access to Him and I am taking advantage of it.
2. Changing what I put into my body. More water specifically.
3. Discipline through CG workouts. Build muscle, grow lung strength, push yourself mentally and encourage others around you. Take an hour for yourself to take care of your body and grow your mental toughness.
4. Choosing family and quality relationships while putting down the things that keep us from it. My FB friends do not fulfill me more than family.
5. Financial freedom. Stop using things to buy happiness. Get out of debt .
I struggle being generous because I fear not paying bills, but the truth is I am spending all my money on things for myself to make me happier. Time to stop.
This year is the year to make changes needed now that God has my attention.
One thing is for sure, I have never looked at my face so much as when I have been a virtual teacher in quarantine. Virtual conferences, my pic on a million teaching apps, recording my teaching, having to post pics of me to document I am working…I see me a lot and I am only looking quarantine cute.
My house looks like a hot mess!
I stare at this all day or constantly check my cell phone to respond in a timely manner.
I have heard the background noise of other people's houses more than I ever care to hear. There are some loud homes out there, America!
The codes, the codes, the codes. All the codes to get into all the things! Managing my class and my son’s classes just add to all the codes, new apps downloaded, new accounts created and all this technology makes me want to do my next topic…
Work out, walk, stand outside, put my headphones in and be by myself. I look forward to a workout every day now that there is time. Something about being still in nature and with God is special right now more than ever.
The hardest part is explaining it to a child that truly cannot get it. No words can explain it and it is hard to say no friends, no school, no going to parks. God is good and we will be stronger from this. Pastor Steven Furtick says it is not a matter of if this will end it is a matter of when it ends will you be better from it??
So I am one the many the media keep talking about with a compromised immune system. Do I look unhealthy or sick? Probably not. Can you tell that I have Lupus? Definitely not because you cannot tell from the outside. But I can tell. I know my Lupus by the fevers I get on a daily basis. I can tell by the aching joints, the rashes, the fatigue and twice daily necessary steroids to stay somewhat normal so I can make it through the day. I know by the year round anemia and decreased white blood cells. Truth is I may never know if I have the Corona Virus because I live with those symptoms daily. My life is all the symptoms especially in a flare. My blood work always comes back low and abnormal. Not a pretty picture, but my reality.
However, and I am probably in the minority here, my health is my biggest concern not yours or the public. I mean the public has a part by not knowingly going out with contagious diseases, but not going out right now where anyone can have been exposed and not know is all me. In the midst of all this I need to quarantine myself and not be out exposed. The truth is you do not know what to look for, but I do. So since my disease is one of those that is mysterious and easily covered up then it is up to me to stay safe. Reality is you would have no idea my immune system is compromised unless I told you. So I pray for all the people like myself that others eyes are opened. I pray my symptoms and yours stay mild. I pray all your organs stay active and well and that the good Lord brings a miracle quickly for not just this disease but sickness and disease everywhere including the heart disease of not knowing Jesus!
This is the face of ADHD. As a teacher, I have often seen it as a setback. It keeps the student from working and keeps the student from sitting, but overall not a huge deal in the world of health problems. Then I became the parent of a child with ADHD. To be fair he is more ADD then anything else, but the new trend is to say it is all ADHD and that is fair since distracted decisions can be hyper ones too.
The truth is my son is the most amazing kid! He sees things outside the box for what they could be and not what they are right now. He is full of life, joy, curiosity and wonder. To be honest, entering school has beat a lot of that out of him as testing and being on grade level has overtaken his beautiful mind. He is a challenge to teach and parent, but no other kid will change you like he will…he just makes you see life differently.
As a parent, I can now see why it is considered a disability under Other Health Impairment and is under the umbrella of special education. His ADHD keeps him from learning, being organized, making transitions, keeping friendships, taking tests (and we know school has become one giant test), and socially keeps him acting at a grade level below his which really influences his behavior. As a parent, it is scary to think about him driving and working and even keeping a family…it really does make life as we know it hard, but he hardly notices it. As his parents, we have to teach him to manage it, overcome it and make adjustments to the way his brain works.
As his mom, we have to call in his prescription month by month as it is not refillable and we have to see the doctor quarterly to update progress. Getting medicines is not as easy as some may believe and is very expensive for all those teachers like myself that just said “medicate”. You have to be diligent in getting medical attention and be willing to pay for it. We tried everything before medication including CBD oils since we know all the risks and did not want to lose the personality of our son…but in the end we knew he needed them to function and to learn. It was best for him and we would never say no to medicating his epilepsy, so why say no to medicating this.
I write all this to say if you are like my brother and say ADHD does not exist…you are wrong-this is real. It is more than being a boy or just a kid if you truly have it…it may be over diagnosed…but it is real. If you are a teacher and say that discipline at home can fix it, wrong again. Discipline sometimes beats the kid down as my son was always in trouble. We said all too often, “try harder”, “pay attention”, “listen”…truth is he couldn’t and was trying harder than most. If you are a parent saying that medication seems wrong, maybe try other things first, but at the end of the day if it affects learning and day to day living then ask yourself “Would I not give him cough medicine if he was coughing?” I truly believe this is an illness of the brain and needs and the child needs extra help to do what others can do on their own.
Obviously, a true diagnosis takes lots of time, discernment and doctor approval, but I write this to speak up for the kids that need you to know the truth. The image above is my son 100%. I see now how much he endures to do very common things and how we need to support, encourage, but also teach him to manage his symptoms. I want to be sure I am not always beating him down with my misunderstanding. I also want to be sure I treat my students with this disability with respect as well. I need to create the classroom environment where these kids can thrive! The truth is we can all do better to understand this and support those that have it or the families navigating these murky waters.
This is my workspace 30 minutes after my son gets out of school
Every once in a while, I will have one of those parenting moments that are hard to put into words. Those moments that you cannot believe you are here. I have had a few lately as we cross the path into medicine for my son.
My son was diagnosed with seizures at 3 1/2 and has been on meds ever since. We have always known we live in a world of EEGs and MRIs, but we thought that was the bulk of it. We knew he had a bit of a wild side, but many boys do and then he started school…we learned his wild is wilder than normal and it is affecting his learning
So now we are on new uncharted territory. Riding the rapids of ADHD medication and testing for learning disabilities for all the time that focus might have kept him from learning. Hard to be sitting here having these conversations of side effects and dosage but here we are. In the middle of the chaos, God spoke to me at a worship night.
“You were made to be his mom. You were created for this.”
No one will advocate, fight, champion, and dig my heels in the dirt more than me. No one is more stubborn and will do all things possible to ensure he learns. God chose me to parent him…I was born to love this child. This may be new territory, but we will conquer it together.