Category Archives: health

Supplementing your Workout

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My main workout of choice is Camp Gladiator. I love how the workouts are mixed it up to target different parts of physical fitness. I value time with others and growing positive friendships. Recently, I have clung to on-demand virtual. Such a great option when you are low on time, love a certain trainer and like to pick your workout. Virtual works best for me with a child, but community is good when you can get out.

On my random days, I run. Nothing big but run with a target in mind like a distance or space. Recently it is a half mile for time. Goal is to get better while vibing with my music. Music gives me life. It connects me, grounds me, inspires me so the right music is the perfect self care.

A local studio opened up last year in my area that is crazy expensive (like 200 a month for limitless classes), but also offers intense workouts with community. Sometimes people offer the best pick me up and mind focus you need. Arise Kaufman gym hosts cycling, boxing and a new favorite sculpt. Tone and definition is my new goal so this workout is life.

Finally, shakes, energy teas and protein bars are the ways I fuel my body to only further the results. These treats are my motivation as well or even a reward. You gotta inspire yourself sometimes or you will inevitably quit and I struggle with consistency when I am bored.

No matter how you move-just move! We overcomplicate it at times and scare off the people that just need to be told do something…it feels so good when you are done! I believe big our body is a temple from the Lord so treat it well. Life is better when you feel good about yourself.

The Difference of a Year

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I just returned from a week in Mexico.

It was gorgeous, relaxing, adventurous, fun and much needed. I always plan it the week before I return to school as a last way to recharge, reflect and get ready.

The sun, blue water, time for self care is good for my soul. Seeing the Lord’s work in nature and taking the time to listen to what he is saying with new opportunities is a gift.

But this trip hit different because a year ago today my life changed when my marriage changed along with a stressful year in education (see other post about change and reforms in school). In this last year, the stress of all the changes restarted my body to get sick-very sick and it was obvious if you looked at me for the first time ever.

The butterfly rash, psoriasis, weight loss, eye inflammation, dental issues…all the symptoms came roaring back. The hardest was the weight that caused people to ask if I was okay and the hair just getting thinner and shorter without being cut.

It led to two new medications and finally tests and a biopsy.

Pictures do not lie! I usually pull it back, but this night I got feisty!

I often want to step out of the picture or refuse to take it, but I will not let pride and vanity win. This.is.me! This is my season of sickness. It is rough, but my reality. So I will show my confidence and continue to take the selfie or portrait. I an more than my appearance. I hope I inspire young girls that think they are fat or ugly to be confident and brave.

The hair will grow back or I will invest in wigs and hats. This is Lupus and the world needs to know…even Virgin River had a story on the disease!

So I start these meds today and wait patiently for a cure and hopefully an answered prayer with little to no side effects and some relief.

Pray with me!

Stop Going to Google and Start Going to God

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I do it every time.

Hear a diagnosis then Google it to death.

What I really struggle with is fear, control, the unknown and what-ifs.

God has the answer.

When will I learn to start with Him?

He knows, He cares, He loves.

The end.

To Biopsy or Not Biopsy

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After meeting with the nephrologist, she suggests getting a kidney biopsy to learn the extent of the kidney damage. Originally, I thought this was a good idea, but as I learn more I question if this is necessary. Of course, I want to know the extent of the damage, but will it change the treatment? If not, then can we skip it?

Who knew the biopsy would be considered an outpatient surgery? The cost is very high since my deductible is high. The recovery is longer than I thought. Just wondering if it is necessary. I know this is a result of Lupus so let’s get it under control.

I question if I do not get it, will I miss treatment that is necessary. Who knows. What I do know is Lupus is evil. It attacks healthy cells. It attacks organs. It masks itself as good. It is deadly, painful and rests only to act up again. It is uncurable and induced by stress but our world is stressful.

So for now I pray and wait and hope for a cure and long for a full life not cut short by disease.

Lupus Update and Reality

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I got my 2nd chest xray recently and the results of the awkward 24 hour urine test (so gross to capture my pee for 24 hours straight).

The urine test confirmed high protein so now I go to a kidney doctor to get biopsy and learn more. The doctor should be able to put me on the right drug to calm the disease.

The xray showed no progress so they conclude it is not pneumonia, but rather my scoliosis crowding my lungs. It is weird since I had symptoms of congestion and cough and the antibiotics helped. However, the xray revealed just crowded organs with a suggested follow up to be sure.

Basically we have to calm the disease before it continues to attack more organs. I have seen improvement since being less stressed and off of work. Resting more and doing things I enjoy and relaxing. I gained 9 pounds since May. True blessing!!

So now we explore how to help my kidneys and calm the disease so “Lupus will stop doing what Lupus does which is attack healthy cells and your body.”

The journey continues!

Golf even if you suck!

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I suck at golf. The guys behind us confirmed our slowness but we did it anyway. No practice and way too much confidence but we finished and laughed and kinda loved it despite 104 temps.

Whose idea was this? Oh wait….it was mine.

Bought a cute outfit. I was on point

Was I the best? No where near it. But we laughed, took pics, made new friends, had an adventure.

Live life and have a blast!!

Who Doesn’t Have 30 Minutes?

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My recent health Journey had me put a hold on intense workouts. For one, I had no calories to burn. For two, the workouts wore me out with my low body weight and muscle burn. Little did I know these last couple of months I had pneumonia and possible kidney disease (we are learning more with tests).

I know a key to handling Lupus is exercise and it workouts are so good for my stress. Add in that at this weight, muscle tone and definition is so nice. And you cannot forget it is swimsuit season so even though I struggle with my bony frame and hair loss…I want to look as good as possible.

Smaller chested brunettešŸ˜‰

Although it feels like I am wasting my Camp Gladiator membership…I have started utilizing the website. Specifically, on demand workouts and quick hitters. 30 minute workouts targeting the areas you want to grow. Who does not have 30 minutes to take care of yourself?

Choose the time, the area of focus, the trainer- it is all up to you. Great for those that cannot go all in, but cannot afford to give up.

Lupus/Health Journey 4 and Adoption Day

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Happy Adoption Day to Callen! 9 years ago yesterday we made his Adoption official in a courthouse in Houston!

Had another appointment with a Rheumatologist and it is getting expensive with co-pays! Found more protein in the urine so now we do a 24 hour Urine test which is gross and kinda tedious. Holing to find more answers!

Just Cycle!

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I love Camp Gladiator, but sometimes you need to mix it up. So happy to share I found cycling! A new gym opened up in Kaufman called Arise. It is more elite with top notch equipment and technology. I have not tried everything, but I am hooked on their cycling!

Hear me now…it is expensive. 20 dollars a class…makes CG look cheap, but it hurts so good! I love you can track your performance, set goals, compete as a team and it is inside! Hot, cold, rainy…you are good!

Recently I found the love of theme classes! Praise and worship class to feed my soul. Lil Wayne to feed my inner hip hop. Lizzo to feed my diva. The music gets me going as I push myself to new records or just release my stress.

Of course, I still love my CG. Recently I found Camp Gladiator on demand workouts and Quick hitters have hit the spot! 30 minutes- you can do anything. No need to carve 2 hours out of your day…just get it done and check it off!

The live part makes it interactive but sometimes you need people so going in person is nice too. Whatever you choose to do to focus on your health…just move!!

You will not regret it!

Which Flare? What does a Lupus flare feel like?

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Today I go to two doctors to check on symptoms of inflammation. One is an eye doctor…my eyes have been on fire lately and the second is my regular check up to see if the Methextrate is working or we need to try something new. Many Lupus drugs have serious side effects, so I need to be careful and check blood work often.

Going to the doctor today got me thinking about all my flares the past ten years. I often get asked “What does a flare feel like?” My response is “Which one?”

My first flare was my worst…achy joints, high fever always, weight loss, fatigue, cold all the time. We started Plaquenil and within three months I was feel good again…a new norm of anemia, infertility and fatigue always, but not hurting.

My second big flare was achy joints, fatigue and hair loss. Patches of bald spots and an itchy scalp that kinda surprised me since I did not know my hair was connected to auto immune issues

My third big flare was my scariest. Lung inflammation. I felt like I was going to have a heart attack. I could not catch my breath and my chest hurt. Again, no clue my lungs could be connected to my Lupus.

This one has lasted the longest…mirrored more Rheumatoid arthritis than Lupus. It caused me to change my meds to focus on joint pain rather than fatigue. It caused my hands to go crooked and surprisingly has impacted my eyes. No clue if it is inflammation or allergy or random coincidence but my eyes have been burning. This flare also impacted my weight and fatigue and now thinning hair. A big surprise is the new inflammation in my stomach…food does not process which makes me feel malnourished.

The crazy thing is insurance causes me to need referrals and it is hard to know what can be treated with a GP versus a specialist. So much is determined by Lupus and is just confusing. So my goal today is to get answers and maybe a better plan. I feel good mentally, but Lupus can cause depression too and I have had that this time as well. Pray that God leads me to answers and wisdom today!

I am blessed with all the advancements in this tricky disease. I am learning to accept myself at my lowest weight, infertile, bruised from blood thinners, thin hair that does not grow out and feeling tired all the time. Learning I am who I am with this disease. No one can truly understand it through my eyes and what I go through each day to make it to the next as a mom and teacher and wife…but God is using this for His glory! Adoption and more has been a gift in this and I am not dead. I have felt like dying is near at times or even frustrated that my quality of life at 42 is so different …if this is 42 what will 62 feel like…will I live to see 72? Does my child get the mother he deserves?

In it all, I will take this life and live it awake. I will appreciate what I do have through a support system and medical team. God is good!

Today I am focusing on Psalm 136:1. I am giving thanks to God. Thankful for my body. Thankful for my medical team. Thankful for prescription drugs. Thankful for a supportive husband. Thankful for prayer. Thankful for days to take off for the doctor. Thankful for the beauty in the ashes. Thankful on purpose.