Category Archives: lupus

Lupus and the Corona Virus

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So I am one the many the media keep talking about with a compromised immune system. Do I look unhealthy or sick? Probably not. Can you tell that I have Lupus? Definitely not because you cannot tell from the outside. But I can tell. I know my Lupus by the fevers I get on a daily basis. I can tell by the aching joints, the rashes, the fatigue and twice daily necessary steroids to stay somewhat normal so I can make it through the day. I know by the year round anemia and decreased white blood cells. Truth is I may never know if I have the Corona Virus because I live with those symptoms daily. My life is all the symptoms especially in a flare. My blood work always comes back low and abnormal. Not a pretty picture, but my reality.

However, and I am probably in the minority here, my health is my biggest concern not yours or the public. I mean the public has a part by not knowingly going out with contagious diseases, but not going out right now where anyone can have been exposed and not know is all me. In the midst of all this I need to quarantine myself and not be out exposed. The truth is you do not know what to look for, but I do. So since my disease is one of those that is mysterious and easily covered up then it is up to me to stay safe. Reality is you would have no idea my immune system is compromised unless I told you. So I pray for all the people like myself that others eyes are opened. I pray my symptoms and yours stay mild. I pray all your organs stay active and well and that the good Lord brings a miracle quickly for not just this disease but sickness and disease everywhere including the heart disease of not knowing Jesus!

Vanity over Sanity

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It is officially 2020 and it seems that everywhere you look it is about weight lifting or weight loss…getting thin or getting bigger…going to the gym or going to the grave….everyone has an opinion. Something I have learned from being married to a man that seems to also be married to the gym is that the better they look…the more insecurity there seems to be. I am not saying everybody, but surprisingly more people than I thought struggle with this idea of getting older, getting fat or getting behind. Some go to shortcuts to create an edge through shots or surgery or pills etc. All of that leads to a quick fix for the moment, but if the mind is not right the self doubts will always come back. In short, it seems some choose vanity over sanity and the issue does not seem to be disappearing anytime soon.

My husband and I argue about this a lot because with Lupus, I need to work out, but I always feel so tired. I always feel like if I had an extra hour in my day it would be for anything else than the gym. However, what I am finding is I actually do feel better whenever I get in there. I am not like my husband with the discipline to go at whatever cost, but I have found myself trying to make it more than I ever had previously. Something about the pre-workout, the right music, the right protein shake and being by myself in the gym excites me. There are all kinds of workouts, but I am still a good old fashion gym rat through and through. (Just do not check my attendance please!) Here lately my go to has been nutrition shakes that cost half my salary, but make me feel like I am putting forth effort to have that beach body by July.

If you saw me you would likely roll your eyes that I am even writing about weight loss as I am a small girl, but my issue is to turn fat into muscle and not look like the wind could kick my a@#. It is true…my arms are weak, but my mind makes up for it. I pray at some point that we can all get to a place of appreciation, of self check when we need to get it together rather than others opinions deciding for us, a place where vanity and sanity can coexist and aging will be just as sexy as Carrie Underwood’s legs. But until then my plan of action is to tell myself and others they are beautiful and worthy and enough. To stay healthy for life, to stay emotionally and mentally grounded for the good of your well being and be okay with the person God created whatever phase of life you are in. 2020 will be the best year yet!