Category Archives: disease

Real Talk with Teaching Time in Quarantine

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One thing is for sure, I have never looked at my face so much as when I have been a virtual teacher in quarantine. Virtual conferences, my pic on a million teaching apps, recording my teaching, having to post pics of me to document I am working…I see me a lot and I am only looking quarantine cute.

My house looks like a hot mess!

I stare at this all day or constantly check my cell phone to respond in a timely manner.

I have heard the background noise of other people's houses more than I ever care to hear. There are some loud homes out there, America!

The codes, the codes, the codes. All the codes to get into all the things! Managing my class and my son’s classes just add to all the codes, new apps downloaded, new accounts created and all this technology makes me want to do my next topic…

Work out, walk, stand outside, put my headphones in and be by myself. I look forward to a workout every day now that there is time. Something about being still in nature and with God is special right now more than ever.

The hardest part is explaining it to a child that truly cannot get it. No words can explain it and it is hard to say no friends, no school, no going to parks. God is good and we will be stronger from this. Pastor Steven Furtick says it is not a matter of if this will end it is a matter of when it ends will you be better from it??

Lupus and the Corona Virus

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So I am one the many the media keep talking about with a compromised immune system. Do I look unhealthy or sick? Probably not. Can you tell that I have Lupus? Definitely not because you cannot tell from the outside. But I can tell. I know my Lupus by the fevers I get on a daily basis. I can tell by the aching joints, the rashes, the fatigue and twice daily necessary steroids to stay somewhat normal so I can make it through the day. I know by the year round anemia and decreased white blood cells. Truth is I may never know if I have the Corona Virus because I live with those symptoms daily. My life is all the symptoms especially in a flare. My blood work always comes back low and abnormal. Not a pretty picture, but my reality.

However, and I am probably in the minority here, my health is my biggest concern not yours or the public. I mean the public has a part by not knowingly going out with contagious diseases, but not going out right now where anyone can have been exposed and not know is all me. In the midst of all this I need to quarantine myself and not be out exposed. The truth is you do not know what to look for, but I do. So since my disease is one of those that is mysterious and easily covered up then it is up to me to stay safe. Reality is you would have no idea my immune system is compromised unless I told you. So I pray for all the people like myself that others eyes are opened. I pray my symptoms and yours stay mild. I pray all your organs stay active and well and that the good Lord brings a miracle quickly for not just this disease but sickness and disease everywhere including the heart disease of not knowing Jesus!

Vanity over Sanity

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It is officially 2020 and it seems that everywhere you look it is about weight lifting or weight loss…getting thin or getting bigger…going to the gym or going to the grave….everyone has an opinion. Something I have learned from being married to a man that seems to also be married to the gym is that the better they look…the more insecurity there seems to be. I am not saying everybody, but surprisingly more people than I thought struggle with this idea of getting older, getting fat or getting behind. Some go to shortcuts to create an edge through shots or surgery or pills etc. All of that leads to a quick fix for the moment, but if the mind is not right the self doubts will always come back. In short, it seems some choose vanity over sanity and the issue does not seem to be disappearing anytime soon.

My husband and I argue about this a lot because with Lupus, I need to work out, but I always feel so tired. I always feel like if I had an extra hour in my day it would be for anything else than the gym. However, what I am finding is I actually do feel better whenever I get in there. I am not like my husband with the discipline to go at whatever cost, but I have found myself trying to make it more than I ever had previously. Something about the pre-workout, the right music, the right protein shake and being by myself in the gym excites me. There are all kinds of workouts, but I am still a good old fashion gym rat through and through. (Just do not check my attendance please!) Here lately my go to has been nutrition shakes that cost half my salary, but make me feel like I am putting forth effort to have that beach body by July.

If you saw me you would likely roll your eyes that I am even writing about weight loss as I am a small girl, but my issue is to turn fat into muscle and not look like the wind could kick my a@#. It is true…my arms are weak, but my mind makes up for it. I pray at some point that we can all get to a place of appreciation, of self check when we need to get it together rather than others opinions deciding for us, a place where vanity and sanity can coexist and aging will be just as sexy as Carrie Underwood’s legs. But until then my plan of action is to tell myself and others they are beautiful and worthy and enough. To stay healthy for life, to stay emotionally and mentally grounded for the good of your well being and be okay with the person God created whatever phase of life you are in. 2020 will be the best year yet!

Surreal Parenting

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This is my workspace 30 minutes after my son gets out of school

Every once in a while, I will have one of those parenting moments that are hard to put into words. Those moments that you cannot believe you are here. I have had a few lately as we cross the path into medicine for my son.

My son was diagnosed with seizures at 3 1/2 and has been on meds ever since. We have always known we live in a world of EEGs and MRIs, but we thought that was the bulk of it. We knew he had a bit of a wild side, but many boys do and then he started school…we learned his wild is wilder than normal and it is affecting his learning

So now we are on new uncharted territory. Riding the rapids of ADHD medication and testing for learning disabilities for all the time that focus might have kept him from learning. Hard to be sitting here having these conversations of side effects and dosage but here we are. In the middle of the chaos, God spoke to me at a worship night.

“You were made to be his mom. You were created for this.” 

No one will advocate, fight, champion, and dig my heels in the dirt more than me. No one is more stubborn and will do all things possible to ensure he learns. God chose me to parent him…I was born to love this child. This may be new territory, but we will conquer it together.

5 Things I Learned from Lupus

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I feel like I am a success story with Lupus. One big reason is that the good Lord gave me mild symptoms and for that I am grateful, but another big reason is I have learned to live with it and know my place with this autoimmune disease. So here are the top five things I have learned after being in tune with my autoimmune:

1. What you eat matters!

This took me a while to accept but it is true. Certain foods (mostly processed) will send me into achy overdrive. It does not mean that I cannot or do not eat those delicious cheese fries, Cheetos or fried anything…but it does mean I know I will pay the price and honestly it is not always worth it.

2.Have less fear if the liquid is clear.

I had read somewhere that the darker the liquid, the more things added to it. No clue if it is true, but I have found the clear liquids do not send my body fighting as much as the dark. Coke, beer, sweet tea (why, God, why?) get me achy and fatigued, but if I stay with Vodka, Sprite or of course water then I can usually keep the party going.

3. Say yes to the mattress!

Who would say no to a good nap?? I immediately get sick when I live a lifestyle of less than 8 hours of sleep. Now life is busy so this is not always possible, but our bodies are made to need rest and we need to choose to listen.

4.Say NO to stress!!

As a teacher, stress is inevitable. A quote I read says “Teachers make more minute by minute decisions than a surgeon.” I believe this…so stress will happen, but I can choose to avoid stress whenever possible and I do. One way is I stopped watching reality shows or any show that is fighting just to fight…trust me this was hard…but Real Housewives or Mobwives just had to go. FB drama had to go too…I refuse to click on the video with the fight or add comments to the political posts going nowhere. In my marriage, when things get heated…I go to the word and prayer instead. Life in general is lived more peacefully when you know God is in control and has a purpose for you. Now, I am not quite at the place where yoga is more calming than painful, but I am sure I will get there.

5. FINALLY..Exercise helps.

This is tricky because overdoing it wears me out. Also, when I have already worked all day the last thing I have energy to do is go to the gym, but it helps. I will admit that. Probably helps with the stress and mind part of things, too. But I used to refuse to work out and now I make time for it. In the beginning, it is exhausting, but as you build stamina it gets better. 

Now I am sure you are all reading and thinking duh! Even people without Lupus know eat right, get exercise, and rest will help the body…but here is the question: do you do it? Likely, a little but not all the way. I have learned I have to do it or I have no energy, run a fever and experience joint pain. No fun, right? So everything is a choice but my choice is made loud and clear with my body. I have learned to (finally) listen to my Lupus for a happier life!