Category Archives: absence epilepsy

Surreal Parenting

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This is my workspace 30 minutes after my son gets out of school

Every once in a while, I will have one of those parenting moments that are hard to put into words. Those moments that you cannot believe you are here. I have had a few lately as we cross the path into medicine for my son.

My son was diagnosed with seizures at 3 1/2 and has been on meds ever since. We have always known we live in a world of EEGs and MRIs, but we thought that was the bulk of it. We knew he had a bit of a wild side, but many boys do and then he started school…we learned his wild is wilder than normal and it is affecting his learning

So now we are on new uncharted territory. Riding the rapids of ADHD medication and testing for learning disabilities for all the time that focus might have kept him from learning. Hard to be sitting here having these conversations of side effects and dosage but here we are. In the middle of the chaos, God spoke to me at a worship night.

“You were made to be his mom. You were created for this.” 

No one will advocate, fight, champion, and dig my heels in the dirt more than me. No one is more stubborn and will do all things possible to ensure he learns. God chose me to parent him…I was born to love this child. This may be new territory, but we will conquer it together.

Power of a Teacher

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I never knew the value of a teacher until I put my son in a classroom. Up until this moment, there was no one human (beside his parents) influencing his life…now there is one person we call his teacher; it changed everything.

It started with her rules becoming our rules around the house. Like one day I said booty and he quickly chimed in “Ms. Monica says we do not say booty!” It later turned to the way she does things like pass out snacks or wash hands. I quickly learned Mrs. Monica is a powerful person and to get on the same page as her or be told I am doing it wrong.

Later it turned into more than that…more meaningful. When she picked up his early signs for seizures were starting again so we could call the doctor. When she could tell he was acting off and might have an ear infection. When we were worried about his development and she could honestly say what was normal or delayed or influenced by others. Her experience and input became very important and valued.

Finally, as he was in her class for over a year, she became like a second mom. I trusted her to call me if the symptoms got worse so I could come pick him up. She also would tell me good ideas for next birthday gifts based on things he enjoyed. Made me aware of good times and bad times with other kids since I would hear about it later anyway. Helped with the transition when he began to be over aggressive and allowed us time to correct it before labeling him the bad kid. When he fell she doctored it up and knew he loved band aids or helped me out when I forgot a blanket. She understood the vomiting was not sickness but a side effect of his meds so let him stay at school or the coughing was allergies and not a cold. She especially was a saint when he had diarrhea due to his meds and allergies and heroically changed him or kept him near the potty. Clearly going above and beyond, but did it anyway.

As a teacher myself, she understood that days off are hard so she helped out when she could or at least gave me time to get a lesson plan made and return. She gave patience, grace and mercy knowing that the teacher life gets complicated because you cannot just call in sick without creating a plan. I never expected this of her, but was grateful when she offered.

With all this talk about teacher this and that…it all changes when it is your kid and you really see their power and influence on your child. You want the best and I was fortunate to have that in Mrs. Monica. Today is his last day of Pre K. He will no longer go to this daycare as he starts Kinder with me in the fall. I am thankful he has had a great 2 years, but sad that it is over. It means he is growing up and moving on and the moving on means change which is hard for this mama. I will no longer have her as a partner in raising my child (and for those haters…teachers see the child awake more than the parent most days so yes they partner to raise them…the teacher should not do it all, though). 

So today I thank and salute the teacher that does way more than teach. I thank you for loving and praying and filling in the gaps that this working mom leaves. You are a gift from God and an answer to prayer. Your influence is endless and will be remembered for a lifetime as his first school teacher. Thank you!!

Adventures with Absence Epilepsy

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We noticed when he was around 3 that he would have these moments of going blank. At first, it was so quick that you would have to be staring at him to see it. Over time, it became more often and more noticeable that it was pretty obvious. At his worst, they would occur 20 times an hour and his eyes would roll back in his head. After much testing, we were finally able to get him diagnosed and on medicines.

Now, he has been on medication for over a year and we notice some academic delays. These are delays that could have always been there or delays caused by the seizures, either way we want to be able to make the best decisions for his schooling.  As part of the process, we were instructed to get another EEG and thankfully we could do it over the summer. He did a great job! This test is stressful for this mama as they flash lights in his face, make him sit still for 30 minutes and strap him up to a machine. We are hopeful the results will give us more answers that the medicine is working. His testing was done at a hospital just for children which feels more like a playground! One of his favorite things is the trains…they are amazing and such a blessing to a nervous mom.

He is smiling so big because we timed that shot perfectly so he was in a pic with a train. God has been so good to us during this process to get him the treatment he needs. We are hopeful that he grows out of the seizures in a few years and continues his path to greatness.