Adventures with Absence Epilepsy

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We noticed when he was around 3 that he would have these moments of going blank. At first, it was so quick that you would have to be staring at him to see it. Over time, it became more often and more noticeable that it was pretty obvious. At his worst, they would occur 20 times an hour and his eyes would roll back in his head. After much testing, we were finally able to get him diagnosed and on medicines.

Now, he has been on medication for over a year and we notice some academic delays. These are delays that could have always been there or delays caused by the seizures, either way we want to be able to make the best decisions for his schooling.  As part of the process, we were instructed to get another EEG and thankfully we could do it over the summer. He did a great job! This test is stressful for this mama as they flash lights in his face, make him sit still for 30 minutes and strap him up to a machine. We are hopeful the results will give us more answers that the medicine is working. His testing was done at a hospital just for children which feels more like a playground! One of his favorite things is the trains…they are amazing and such a blessing to a nervous mom.

He is smiling so big because we timed that shot perfectly so he was in a pic with a train. God has been so good to us during this process to get him the treatment he needs. We are hopeful that he grows out of the seizures in a few years and continues his path to greatness.

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