Monthly Archives: January 2014

Selena Gomez and I might finally have something in common…

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Rumor has it that Selena Gomez has Lupus and is taking time off from her tour to rest and recover.  Now, let me reiterate it is a rumor and has not been confirmed, but sources say it is true.  First, the more celebrities that get this mysterious disease the better because that is how money gets given to find a cure.  I envision a day where every NFL or basketball team is wearing purple on one game a year in honor of finding a cure for Lupus…I love pink for breast cancer awareness, but the campaign has done a great job and now that disease has an 85% cure rate…let’s include a disease that has yet to be cured and affects way more women than men most in their child bearing years (of course I say all this knowing a cure will help me and I say all that out of respect for the amazing job that Susan G Komen has done to get funds); heck let’s raise funds for both diseases and wear pink and purple!

Well, Selena, if this is true then I know how you feel.  We don’t have the same taste in men, but we do have the same fatigue and aches and pains that come with Lupus.  If you are like me, the more you do the more tired you get and the more angrier you get for not doing all the things you want to do.  Like me, you don’t look sick so people don’t expect you to act sick.  Like me, you have big dreams of working out and not getting fat, but one pill of Prednisone and you gain five pounds and your face looks like a bloated moon.  You may be like me and wake up with joint stiffness every day so bad that you have to strain to pick up your baby and some days you just can’t pick him up.  You have to have your husband open jars because your fingers won’t twist right and Bengay is on your night stand to relieve your shoulder pain.

You might have to take six different vitamins to replace the ones that are lost and you might find sweet symptom relief from a hysterectomy.  In short, if you have it, then I get you way more than most.  So, I hope you don’t have it because it sucks.

Saying all that, I am so blessed because my heart pumps fine, my kidneys work, I have all my neurological functions and I can work my full time job (even though the stress keeps me in a constant flare and the lack of sleep because I have a child brings me down the entire school year…I am fortunate to work since many cannot).  I pray it does not affect your fertility like it did me because one day you and Justin will make beautiful babies…but if it does then adoption is a beautiful thing, too and God has his Hand on that as well. 

Some days this disease is just something I have on my medical records and I forget I have it, but here lately, it is a constant reminder that I have to slow down, get rest and take care of myself if I want to enjoy the next twenty years of my life.  The morning are the worst and to say that I won’t get tired with a baby is a joke.  I am fortunate that I have a great husband that knows how much I hate to say “I can’t” so he does it before I have to and I save face every time.

The good news is: Lupus is a chronic disease, but not a terminal one and it can be treated…but it is mysterious.  It is a strange thing to know that your own body is your worst enemy.  I appreciate all your prayers because I need them.  Glory to God for making all things for the good of those that love Him.

Second Christmas

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What a blessing to share another Christmas with our son. We were able to reflect on our Christmas from last year with our fifteen day old son. We were already blessed more than we could have imagined and this year has only brought more joy. We had bits of sadness losing both of my grandparents, but I can never complain for having them in my life for 33 years. I just wish they could have experienced the joy of Callen. Time is like that…we are not guaranteed tomorrow so we live boldly by faith today. I pray to live in the moment in 2014 and appreciate each new day as a gift. I know how quickly it all can change and in a minute you can go from normal to chaotic.

The pics above were taken by kellyaguilaraphotography. She is amazing and has taken every photo shoot of Callen from his newborn pics to our Forever Family photos to our one year and Christmas card shoot. I love how patient she is with us and how she has an eye to get just the right shot that comes out perfect. I was fortunate to get his month by month pics as he grew each new month and even made a brochure of each month including all his milestones and new advancements. The first six months were an adoption requirement, but the last six was just for my memory and baby book. I am still living as if he is our one and only and doing every little thing I can dream and hope to do…if he is our last then I would have lived it to the full. If he is not, then our second will probably only have half of this as the newness would have worn off 🙂

THe good news is: This year has been a blessing and I pray for continued good health and growth. This next year will bring some new experiences: weaning off the bottle, switching to milk and solids only, walking and running, talking both to me and back at me, figuring out his ever growing shoe and clothes size and so much more, but mostly loving, laughing and sharing our hope in Jesus Christ. Brint it on, 2014-we will live life with joy and to the fullest!